I'm Dying to Tell You
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I'm Dying to Tell You
Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the...
Episoade Recente
118 episoade
Eric Paslay on “Come Into Our World,” a Song for ALS Awareness
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Grammy-nominated, platinum-selling singer-songwriter Eric Paslay joins me to talk about about the night he drew my song idea out of...
Salym Liufau: Finding New Ways to Live with ALS for Her Four Children
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In this deeply moving episode, I sit down with Salym Liufau, a 33-year-old mother of four living with ALS, whose grace and honesty h...
Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -2/2
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In this second part of my chat with 33-year-old widow Melanie Lang, we talk about her & her husband Tyler’s biggest miracle, their d...
Young Widow’s ALS Story: Faith, Love & Their Miracle Baby -1/2
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I catch up with 33-year-old widow Melanie Lang to share how she and her husband Tyler faced ALS with relentless honesty, deep faith,...
Veterans, ALS and the Will to Fight!
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This Veterans Day episode brings together three service members living with ALS—Liz Fassler (Army), Ron Faretra (Air Force), and Joh...
Happy Hour with Her ALS Story and "Hop" of Zac Brown Band
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In this Happy Hour Chat, I talk with Tina Cascio, Mira Hudson and Kelly McGinn, all young women who share their journey living with...
Supermilk's Jake Popyura: Navigating ALS with Humor & Music
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This episode follows the powerful and unexpectedly uplifting story of Jake Popyura, a musician and multi-instrumentalist in the indi...
Life After ALS: A Journey of Healing and Hope
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The emotional aftermath of losing someone to ALS is a journey rarely discussed but vitally important to understand. Caroline, Jill,...
Love, Legacy & Lou Gehrig Day: A Team Effort Against ALS
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In this heartfelt episode, we meet the individuals behind Always Lifting Spirits, Chair Force 1 Foundation, Operation Ramp It Up, Qu...
Elin Adcock - Her Journey Facing ALS and FTD Together
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Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s no...
Questions About ALS? There's an App for That: Roon!
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When faced with an ALS diagnosis, finding trustworthy information shouldn't add to your burden. This episode introduces a groundbrea...
Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action
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What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I si...
I AM ALS Turns 6: Community Teams Inspiring Change
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Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six y...
Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack
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Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. Th...
Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey
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Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year...
"Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALS
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What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from...
Animated Film, LUKi & the Lights: Helping Children Understand ALS/MND
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"LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspir...
Episode 100: A Chat with 100-Year-Old Mildred Kirschenbaum
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To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media sta...
Broadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALS
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In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. A...
Zac Brown Band's John Driskell Hopkins: An Update on ALS, Life and Music
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Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after bei...
Goode and Faithful Servant: A Chat with Kerry Goode
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So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2...
Could it be ALS? - Bob Scannell on ALS Misdiagnosis
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In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his...
“Staying Loudly” - Sam’s Positive Mindset with ALS
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Follow and see what's coming next: Instagram, Facebook, Twitter, TikTok, LinkedIn.
37-year-old Sara Bennett: Life, Death & Parenting with ALS
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In this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old...
LOVE & SUPPORT from ALS Family of Faith
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In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hag...
20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting
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When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alon...
Rebuilding Together After ALS Loss: Juliet Taylor & Tim Abeska
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In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow &...
Community Building Amidst ALS: Karen (thekaregiver) & Tony Vick
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Here you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedica...
How to Find Gratitude During Hard Times
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In this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourage...
Amanda Stevens: Wife, Mom, Caregiver & Founder of AxeALS
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Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on T...
Teen Actor Lance Alexander: "From Junk to Hunk"
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In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as E...
Radio Legend Jim Scott: Living Positively with ALS
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Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country duri...
Military Veteran Kate Peters Battling the Enemy: ALS
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Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, U...
"Hope Fights Back" - Andrea Peet & Meredith Atwood
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Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “g...
"Ask Me Anything" - Host Q & A on Life, Outlook & My Terminal Illness
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This episode is just me answering YOUR questions. I had a lot of requests for this format again, so I asked listeners to send in qu...
Tackling Tough Conversations About ALS (Part 2/2)
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Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives. When...
Tackling Tough Conversations About ALS (Part 1/2)
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When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the...
Power of Positivity with Child Abuse Survivor, Courtney Cirabisi
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In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California. She became reliant...
Q&A: Young Adults Living with ALS (Part 2/2)
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May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat wi...
Q&A: Young Adults Living with ALS (Part1/2)
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In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness. May is ALS A...